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Science, industry economics, patients are boosting research on rare disease drugs - and hope

...into developing treatments for rare diseases, which once drew little interest...Genomics Institute.By definition, a rare disease is one that strikes fewer than...a few dozen. But with 7,000 rare diseases known to doctors, and more emerging...

http://chronicle.augusta.com/news/business/2015-03-25/science-industry-economics
Tips for handling medical expenses that hit before patients pay insurance deductibles

...work Foundation, which offers grants to help cover prescription costs for dozens of life-threatening, chronic or rare diseases. The nonprofit had to hire about 80 temporary employees to help handle the heavy workload it receives at the start...

http://chronicle.augusta.com/news/business/2015-03-01/tips-handling-medical-expe
Bone marrow drive set in Martinez for 5-year-old

The family of a 5-year-old is seeking bone marrow donations to help their son, who has a rare disease.Alex Moore, the son of the Rev. Matthew Moore, of Trinity Baptist Church in Martinez, was recently diagnosed with aplastic...

http://chronicle.augusta.com/news/metro/2014-07-11/bone-marrow-drive-set-martine
SC House allows CBD oil for epilepsy treatments

...severe childhood forms of epilepsy. The designation provides incentives and allows for testing of drugs that treat rare diseases. Currently, the research is being conducted in New York and California.Swing notes that even if her daughter happened...

http://chronicle.augusta.com/news/metro/2014-04-02/sc-house-allows-cbd-oil-epile
Safety still a concern at Watkins Glen International

...treatment," he said."That is not just here in the U.S., yeah we are fighting hard to find cures for the really rare diseases that are here and find better long term treatments. That is why we support the research, but in Rwanda kids aren't...

http://chronicle.augusta.com/sports/nascar/2014-08-13/safety-still-concern-watki
SC bill proposes medical use of marijuana oils to aid epilepsy patients

...for use in rare and severe childhood forms of epilepsy.The designation provides incentives for drugs that treat rare diseases. The second phase of a clinical trial is expected to start later this year.The narrowly drawn legislation is considered...

http://chronicle.augusta.com/news/2014-03-06/sc-bill-proposes-medical-use-mariju
Fundraiser for boy with rare disease

Five-year-old Landin Householder has an extremely rare blood disorder called Langerhans cell histiocytosis.

http://chronicle.augusta.com/news/health/2013-04-01/fundraiser-boy-rare-disease
American Adam Nelson might get his shot-put gold after all

...Athens, Ga., where he's opening a sports performance center and volunteering his time to help raise awareness for rare diseases."Hearing those amazing stories and personal triumphs ? and the losses ? that really puts things in perspective...

http://chronicle.augusta.com/sports/other-sports/2012-12-08/american-adam-nelson
Protocol saves patients from rare deadly leukemia

...then infection after that because of the patient's weakened immune system.But the lengthy protocol for treating the rare disease was also a problem, Jillella said."It is a 15-page document that few people have the time to read and understand...

http://chronicle.augusta.com/news/health/2013-01-27/protocol-saves-patients-rare
Friends of Frances ready to run in Augusta Half Marathon

...of 6-year-old Frances Brown, a child who has a rare disease known as Macrocephaly-capillary malformation (M-CM...and honored that others wanted to join her and run for rare-disease awareness."This year, our Friends of Frances group...

http://chronicle.augusta.com/sports/other-sports/2013-02-23/friends-frances-read