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Safety still a concern at Watkins Glen International

...treatment," he said."That is not just here in the U.S., yeah we are fighting hard to find cures for the really rare diseases that are here and find better long term treatments. That is why we support the research, but in Rwanda kids aren't...

http://chronicle.augusta.com/sports/nascar/2014-08-13/safety-still-concern-watki
Bone marrow drive set in Martinez for 5-year-old

The family of a 5-year-old is seeking bone marrow donations to help their son, who has a rare disease.Alex Moore, the son of the Rev. Matthew Moore, of Trinity Baptist Church in Martinez, was recently diagnosed with aplastic...

http://chronicle.augusta.com/news/metro/2014-07-11/bone-marrow-drive-set-martine
SC House allows CBD oil for epilepsy treatments

...severe childhood forms of epilepsy. The designation provides incentives and allows for testing of drugs that treat rare diseases. Currently, the research is being conducted in New York and California.Swing notes that even if her daughter happened...

http://chronicle.augusta.com/news/metro/2014-04-02/sc-house-allows-cbd-oil-epile
SC bill proposes medical use of marijuana oils to aid epilepsy patients

...for use in rare and severe childhood forms of epilepsy.The designation provides incentives for drugs that treat rare diseases. The second phase of a clinical trial is expected to start later this year.The narrowly drawn legislation is considered...

http://chronicle.augusta.com/news/2014-03-06/sc-bill-proposes-medical-use-mariju
American Adam Nelson might get his shot-put gold after all

...Athens, Ga., where he's opening a sports performance center and volunteering his time to help raise awareness for rare diseases."Hearing those amazing stories and personal triumphs ? and the losses ? that really puts things in perspective...

http://chronicle.augusta.com/sports/other-sports/2012-12-08/american-adam-nelson
Protocol saves patients from rare deadly leukemia

...then infection after that because of the patient's weakened immune system.But the lengthy protocol for treating the rare disease was also a problem, Jillella said."It is a 15-page document that few people have the time to read and understand...

http://chronicle.augusta.com/news/health/2013-01-27/protocol-saves-patients-rare
Friends of Frances ready to run in Augusta Half Marathon

...of 6-year-old Frances Brown, a child who has a rare disease known as Macrocephaly-capillary malformation (M-CM...and honored that others wanted to join her and run for rare-disease awareness."This year, our Friends of Frances group...

http://chronicle.augusta.com/sports/other-sports/2013-02-23/friends-frances-read
Fundraiser for boy with rare disease

Five-year-old Landin Householder has an extremely rare blood disorder called Langerhans cell histiocytosis.

http://chronicle.augusta.com/news/health/2013-04-01/fundraiser-boy-rare-disease
Medical students spend break in research labs

...She studied the common pain reliever celecoxib, sold under the brand name Celebrex, and whether it could help with a rare disease called Carney complex, which causes bone tumors. The lab where Kapil worked wondered whether a genetic mutation common...

http://chronicle.augusta.com/news/education/2011-09-19/medical-students-spend-br
For one girl, Augusta Half Marathon is about more than exercise

...Brown's genetic syndrome and other rare diseases."It's a lofty goal of mine...our genes," the slogan for the Rare Disease campaign which holds its awareness...finish line with information on rare diseases, half of which affect children...

http://chronicle.augusta.com/sports/scott-michaux/2012-02-25/one-girl-augusta-ha