Five-year-old Landin Householder has an extremely rare blood disorder called Langerhans cell histiocytosis.

...then infection after that because of the patient's weakened immune system.But the lengthy protocol for treating the rare disease was also a problem, Jillella said."It is a 15-page document that few people have the time to read and understand...

...of 6-year-old Frances Brown, a child who has a rare disease known as Macrocephaly-capillary malformation (M-CM...and honored that others wanted to join her and run for rare-disease awareness."This year, our Friends of Frances group...

...Athens, Ga., where he's opening a sports performance center and volunteering his time to help raise awareness for rare diseases."Hearing those amazing stories and personal triumphs ? and the losses ? that really puts things in perspective...

...She studied the common pain reliever celecoxib, sold under the brand name Celebrex, and whether it could help with a rare disease called Carney complex, which causes bone tumors. The lab where Kapil worked wondered whether a genetic mutation common...

...Brown's genetic syndrome and other rare diseases."It's a lofty goal of mine...our genes," the slogan for the Rare Disease campaign which holds its awareness...finish line with information on rare diseases, half of which affect children...

...with Alliance Hospice for the care they gave during Mr. Reid's illness. Mack's death was attributed to a very rare disease known as "Mitochondrial Disease". It is the family's desire that memorial contributions be made to aide in the...

...with Alliance Hospice for the care they gave during Mr. Reid's illness. Mack's death was attributed to a very rare disease known as Mitochondrial Disease. It is the family's desire that memorial contributions be made to aide in the cure...

...Cemetery, in Atlanta, Georgia. In lieu of flowers, a memorial contribution may be made toward finding a cure for the rare disease she fought. CurePsp.org 30 E. Padonia Rd, Suite 201, Timonium, MD 21093 or 800-457-4777.

...Sheri Dekle, of south Augusta, attended the drawing with their son, Grant, who won $5,000. Diagnosed with a rare disease, Mr. Dekle had a pancreas transplant in December. The couple has been back and forth to doctor's appointments since...