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Across the area

...up, she saw the craft headed down. Trainee dies of rare disease COLUMBIA -- A Fort Jackson trainee has died from what Army officials are calling a rare disease. Also, at the Marine training base at Parris Island...

http://chronicle.augusta.com/stories/1999/09/05/met_269484.shtml
Metro | Aiken County Board of Education | Columbia County Board of Education | Augusta State University
Bone marrow drive set in Martinez for 5-year-old

The family of a 5-year-old is seeking bone marrow donations to help their son, who has a rare disease.Alex Moore, the son of the Rev. Matthew Moore, of Trinity Baptist Church in Martinez, was recently diagnosed with aplastic...

http://chronicle.augusta.com/news/metro/2014-07-11/bone-marrow-drive-set-martine
Fundraiser for boy with rare disease

Five-year-old Landin Householder has an extremely rare blood disorder called Langerhans cell histiocytosis.

http://chronicle.augusta.com/news/health/2013-04-01/fundraiser-boy-rare-disease
Friends of Frances ready to run in Augusta Half Marathon

...of 6-year-old Frances Brown, a child who has a rare disease known as Macrocephaly-capillary malformation (M-CM...and honored that others wanted to join her and run for rare-disease awareness."This year, our Friends of Frances group...

http://chronicle.augusta.com/sports/other-sports/2013-02-23/friends-frances-read
Protocol saves patients from rare deadly leukemia

...then infection after that because of the patient's weakened immune system.But the lengthy protocol for treating the rare disease was also a problem, Jillella said."It is a 15-page document that few people have the time to read and understand...

http://chronicle.augusta.com/news/health/2013-01-27/protocol-saves-patients-rare
Girl with rare disease doesn't know pain

PATTERSON, Ga. - Ashlyn Blocker's parents and kindergarten teachers all describe her the same way: fearless. So they nervously watch her plunge full-tilt into a childhood deprived of natural alarms.

http://chronicle.augusta.com/stories/2004/11/01/met_433081.shtml
Metro
Baby Gregory dies of rare disease

ATLANTA -- A disabled boy who sparked a legal battle between his parents and doctors has died.

http://chronicle.augusta.com/stories/2003/12/03/met_387942.shtml
Metro
Mom, daughter fight against rare disease

Cristin Gildea lounged on her mother's bed, a thin tube snaking 3 feet from her chest to a small tape-recorder-sized device. The device is a pump, and for 24 hours a day it delivers life-sustaining medicine into the arteries supplying the 10-year-old Columbia, Md., girl's lungs. Wherever Cristin goes -- to school, to play the piano, to sleep -- the pump goes. In the fight to keep the fifth-grader alive, Cristin and her mother, Donna Gildea, shoulder the load -- one carrying the 3-pound pump in a small backpack, the other energetically raising awareness and money.

http://chronicle.augusta.com/stories/1998/05/14/ent_228121.shtml
Things to Do
Patients honor longtime pediatrician

...room. Dr. McManus also sat by Mrs. Clayton's daughter's bedside during lunch breaks after diagnosing her with a rare disease when she was 19 months old. "Doc McManus saved my daughter's life," Mrs. Clayton said. "She's 32 years old...

http://chronicle.augusta.com/stories/2000/05/01/met_286731.shtml
Metro | Aiken City Council
Goaltender has new perspective on life

...realize I may have had my last chance." Salajko was told by doctors at the Mayo Clinic that he had the signs of a rare disease that ended the life of one of baseball's all-time greats - amyotrophic lateral sclerosis, which is more commonly...

http://chronicle.augusta.com/stories/2003/11/02/lyn_387670.shtml
Lynx